Saturday, July 6, 2013

FAQ {or for the people like me ,who until about 5 days ago, didn't know what this meant, Frequently Asked Questions}


  • I have a form of MD {Muscular Dystrophy}, called Charcot Marie Tooth or CMT
  • Yes, sometimes I am in a wheelchair because my legs get tired/weak or I have pains which I call "leg pains" {original right?} that keep me off my feet for sometimes weeks and other times only a day
  • The leg pains feel the way your feet do when they fall asleep, but magnify that x100 and add burning, stabbing pains, and shooting pains all over my body from the neck down.
  • When I'm not in my wheelchair I sometimes use leg braces that go from my knee to my ankle, so no I don't wear shin guards like everyone always thinks I am. Or I'm wearing my cowboy boots because they support my ankles and my legs so I don't trip and they're easy for me to walk in
  • I enjoy everything other people enjoy that includes: movies, swimming {my passion}, writing, reading, food, and movies.
  • I am not defined by my disability, I do not see myself as disabled.
  • I do, however, have FEELINGS and your words do hurt.
  • I believe I was chosen to go through my life with CMT because God has something planned for my life and I am trying to embrace it.
  • No I don't know everything about my disability or living with a disability, so I am open to advice
  • Despite popular belief open to questions if they're asked in a kind way, so if you feel free to comment below in any of my posts and ask! Just keep them kind and polite! I don't bite.

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